Financial

At Team Kye we share the experiences, challenges, and triumphs in the face of Dravet Syndrome, a rare, complex, and severe form of epilepsy. Team Kye is not just about one family’s story; it’s a community built on support, empathy, and hope. We understand that managing the unique needs of a family living with Dravet Syndrome goes far beyond medical care and is just like any family that has special needs. Financial planning is an integral part of the journey, and that’s why we’ve partnered with experts who can provide invaluable assistance to families like ours. Assistance that we’ve not been able to find anywhere else. 

The importance of planning
for special needs families

Families dealing with Dravet Syndrome, epilepsy, or other special needs face numerous challenges, from medical bills and therapy costs to ensuring a comfortable future for their loved ones. The financial impact for each Dravet family from direct and indirect costs exceeds $100,000/year. Navigating the financial aspects of this journey is overwhelming. That’s where our partnership comes in. Learn more about our partner below.

Strength through a personalized financial plan.


Our Financial Planning Services Partner

At Team Kye, we believe in offering specific support to families dealing with Dravet Syndrome, epilepsy, or other special needs. Your situation is unique and your financial solutions should be as well. We’ve spent countless hours researching, connecting, and attempting to find solutions that meet our needs through traditional offerings. Each came up short. To achieve a solution that worked for us, we teamed up with a trusted financial planning services partner that specializes in assisting families with special needs, carrying a unique industry designation called Chartered Special Needs Consultant in addition to being a Certified Financial Planner. But their solutions go well beyond those designations and deliver more effective solutions than what you you’ll hear from traditional financial planners. 


Key Services Provided by Our Partner:

  • Personalized Financial Plans: Our partner works closely with each family to develop a tailored financial plan that takes into account their unique circumstances, including the near- and long-term care needs of a child with Dravet Syndrome or other special need.

  • Understanding Government Assistance: Navigating government benefits and programs can be complex. Our partner has an expert team to help you access the support you’re entitled to while preserving your family’s financial stability.

  • Legal Documentation & Tools: Setting up a special needs trust can be crucial for securing your child’s financial future without jeopardizing their eligibility for government benefits. Ensuring that you have a living will, durable power of attorney, and other legal documents in place will ensure your choices live on even if you can’t be there to make the decisions. Creating a playbook for your child(ren) will give possible guardians a path to success. Our partner guides you through the process and connects you with necessary legal experts.
  • State and Federal Savings Plans: ABLE accounts provide a unique opportunity for individuals with special needs. Our planner can help you understand how an ABLE account fits into your plan. 529 College Savings plans provide a framework for saving for college. The cost of college keeps rising and the pressure of student loans is a long term burden. Our partner can help you understand how a 529 plan may fit into your financial picture.
  • Insurance and Healthcare Planning: Managing medical expenses is a significant concern for families dealing with Dravet Syndrome or other disabilities. Our partner can help you choose the right insurance options and plan for medical costs effectively.

  • Education and Advocacy: Our partner is not just a financial planner; they’re also advocates for special needs families. Their team stays up-to-date with legislation and policies that may impact your family’s financial well-being.


Who Can Benefit from Our Partnership?

While our primary focus is on providing support to families dealing with Dravet Syndrome, our financial planning services partner is available to assist anyone who needs help with their financial planning, including those who are allies and cheerleaders in our journey. We believe that financial planning is a critical aspect of overall well-being and that everyone deserves access to expert guidance that doesn’t provide cookie-cutter solutions.

Get Started Today

Let’s take control of your family’s financial future together. The demands and financial pressures of a growing family have a lot of similarities whether you are a special needs family or not. Whether you’re a special needs family or someone seeking advanced financial guidance, our partner is here to help. Contact with our partner to learn more about our financial planning services and how we can assist you on your journey. Having a certified financial planner that doesn’t give boring advice will accelerate your financial future.


At Team Kye, we understand the challenges you face, and we’re here to support you every step of the way, from sharing our experiences with medical care, to experiences, to financial planning. Together, we can make the journey with a growing family a little easier, one step at a time.

discover strength With a personalized financial plan

Create a robust plan with our partner’s
expert assistance