Resources for Living with Dravet SyndromeA look at Kye's life with Dravet Syndrome and her Service Dog, Trojan and Retired SD London Rose

About

I am Kyelynn; I am 15 years old. I live with Dravet Syndrome. I have a new service dog named Trojan and I still have my retired service dog, Continue Reading →

Service Dog

Dravet Syndrome has caused Kye to have hundreds of seizures, with dozens requiring emergency medical intervention. Many have required trips to the hospital. Dravet Syndrome is more than seizures. Continue Reading →

Dravet Syndrome

 What is Dravet Syndrome? Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Initial Continue Reading →